How frequently should we have an MRI?

Ideally, your child should have an MRI every six months. If the child doesn’t yet have symptoms, and is undergoing treatment with Lorenzo’s oil, the regular MRIs will show whether there are any demyelinating lesions on the brain. Catching these lesions early significantly improves the chances of the other possible treatment—a bone marrow transplant—being successful. If your child already does have symptoms, it is important to monitor how fast the disease is progressing.