Welcome to ALD family support. A group of us families affected by ALD have come together to share our stories and experiences with ALD. Please join us and share your story and input. We have made it our priority to Advocate and support the boy's and families affected by Adrenoleukodystrophy .
We are not doctors , we are parents who have children with ALD. Some of our children are post transplant , some are gone , and some are just beginning their journey. We are here to support the fighters , honor the taken , and Never giving up on Hope for a Cure.
Much of our information has been gathered from other sources and from personal experiences.
No comments:
Post a Comment