Should we and other family members be tested?

This is a difficult decision that only you can make, but there are important reasons why you and your family members should consider being tested for the ALD gene.

For women who may be carriers of the mutated gene, this information—along with good genetic counseling—can help them make decisions about planning their families. Knowledge of their carrier status can help women and their physicians better understand and manage the mild neurological symptoms that manifest in adulthood for some of these women.